Long COVID-19 (PASC) Domain & Caregiver TEP
Domain Description
NIDDK and AHRQ convened the Long COVID and Caregiver Technical Expert Panel (TEP) beginning in August of 2021 to accomplish three key objectives: 1) identify data elements important to the care of people with COVID-19 and/or long COVID (in the context of multiple chronic conditions, MCC), 2) support the inclusion of unpaid caregivers on the care team through access to patient data, and 3) identify data elements relevant to understanding and addressing how the caregiver role affects health outcomes, given that many TEP members are caregivers themselves for people with MCC. In addition, the TEP will help identify data standards from common clinical terminologies (i.e., ICD-10, SNOMED-CT, LOINC, RxNorm, CPT) associated with each data element, in order to improve interoperability of these data elements across settings of care.
For information on roles and responsibilities, expectations, and administration of the PASC & Caregiver TEP, please consult the TEP Charter.
Meeting Materials
Date | Meeting Name | Meeting Agenda and Materials | Meeting Summary |
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| September Meeting | Agenda
Materials
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| August Meeting | Agenda
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| June Meeting | Agenda
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| May Meeting | Agenda
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| April Meeting | Agenda
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| March Meeting | Agenda
Prework: If you have any documentation for long COVID interventions, please share them with karen.bertodatti@emiadvisors.net by Feb 28. Materials
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| February Meeting | Agenda
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| January Meeting | Agenda
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| December Meeting | Agenda
Materials
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| November Meeting | Agenda
Materials
| MCC eCare Plan Project | PASC & Caregiver TEP Meeting Summary - Nov 18, 2021 (PDF, 914 KB) |
| Kick-off Meeting | Materials
| Coming Soon |
Participants
*Denotes Co-Chair
| Name |
|---|
| Alecia Clary, Ph.D., MSW |
| Alex Spyropoulous, MD |
| Allan Levey, MD, PhD |
| Aluko Hope, MD |
| Andrea Lerner, MD, MS |
| Anuj Dalal, MD |
| Audie Atienza, PhD |
| Barrett Bowling, MD |
| Bill Adams, MD |
| C. Grace Whiting, JD |
| Carla Rodriguez-Watson, PhD |
| Carole White, PhD, RN |
| Caroline Blaum, MD, MS |
| Carolyn Clevenger, DNP, RN |
| Charisse Madlock-Brown, PhD, MLS |
| Claire Ashton-James, PhD |
| David Dorr, MD |
| David Graham, MD |
| Diana Berrent |
| Elizabeth Unger, MD, PhD |
| Emily Taylor |
| Esther Oh, MD, PhD |
| Glenna Brewster, PhD, RN |
| Hector S. Izurieta, MD, MPH, PhD |
| Henry Parkman, MD |
| Ian Plumb, MBBS, MS |
| Ivonne H. Schulman, MD |
| Jeff Sparks, MD, MMSc |
| Jennifer Wolff, PhD |
| Jerry Osheroff, MD |
| Jerry Suls, PhD* |
| Kailah Davis, PhD |
| Karen Rose, PhD, MS, RN |
| Katie Brandt* |
| Kevin Bozic, MD, MBA |
| Laura Plantinga, PhD, MS |
| Loretta Christensen, MD, MBA, MSJ |
| Marcel Salive, MD, MPH |
| Marjorie Kelley, PhD, MS, RN |
| Marlıs Gonzalez-Fernandez, MD, PhD |
| Pradeep Podila, PhD |
| Rachel Garfield, PhD, MHS |
| Shelly Spiro, RPh, FASCP |
| Suzanne Pincus |
| Tim Carney, PhD, MPH, MBA |
| Vanessa Diaz, MD |
