Project Kick-off Meeting Materials
The Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions was a two-day workshop with the purpose of convening experts from diverse domains to:
- Understand the data elements important to the care of people with MCC, including CKD, T2DM, CVD, chronic pain and/or OUD, across settings of care
- Identify, discuss and facilitate collaboration across ongoing work relevant to the development of e-care plans for people with MCC
- Discuss challenges and potential solutions relating to the electronic exchange of care plan data with regard to privacy, security, patient preferences, and interoperability, among other issues
The table below includes the meeting materials from that day. To see a full workshop event details and agenda click the link here.
| Date | Meeting Name | Description | Meeting Materials |
|---|---|---|---|
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Background reading: The TEP Meeting White Paper is an environmental landscape review of AHRQ/NIDDK e-care plan related projects The Altarum Care Plan Report is a report on the variety and merits of care plan templates and regulations in use, including implications for information technology | TEP Meeting White Paper Final.docx (DOCX, 23KB) Altarum Care Plan Report.pdf (PDF, 1.2 MB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Putting the Project in Context: Building Data Capacity to Conduct Pragmatic PCOR by Developing an Interoperable Electronic (e-) Care Plan Arlene Bierman, MD Agency for Healthcare Research and Quality (AHRQ) |
(PPTX, 3.8 MB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Putting the Project in Context: Building Data Capacity to Conduct Pragmatic PCOR by Developing an Interoperable Electronic (e-) Care Plan Jenna Norton, M.P.H. National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) |
|
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Defining Care Planning Malaz Boustani, M.D., Indiana University |
(PPTX, 2.6 MB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Primary Care David Dorr, M.D., M.S., Oregon Health & Science University |
|
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Social Work Nicole Ruggiano Ph.D., The University of Alabama |
(PPTX, 1 MB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Long-term Services and Supports Nancy Kusmaul Ph.D., LMSW, University of Maryland, Baltimore County |
|
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Shared Care Plans: Nurses, Physicians, Patients Patricia C. Dykes D.N. Sc., R.N., FACMI, Brigham and Women's Hospital/Harvard University |
(PPTX, 13.9 MB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Background on Key Data and Knowledge Standards Clem McDonalds, M.D., National Library of Medicine |
|
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Data and Knowledge Standards for eCare Plans Evelyn Gallego, M.B.A., M.P.H., CPHIMS, EMI Advisors LLC |
(PPTX, 6.1 MB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Data Standards for Social Determinants Sarah DeSilvey, APRN-C, Northwestern Medical Center |
(PPTX, 17.3) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Data Standards for Chronic Kidney Disease Theresa Cullen, M.D., M.S., FAMIA, Regenstrief Institute, Inc |
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| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Data Standards for eLTSS Elizabeth Palena Hall, MIS, M.B.A., R.N., Health Resources and Services Administration |
(PPTX, 806 KB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | HL7 FHIR Care Plan Connect-a-thons Dave Carlson, Ph.D., M.B.A. |
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| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Pharmacy Care Plan Shelly Spiro, R.Ph., FASCP, Clinical Cloud Solutions, LLC | |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Nursing Care Plans Laura Heerman Langford Ph.D., R.N., Healthcare Services Platform Consortium |
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| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Managing Diabetes: Clinical Perspective Neda Laiteerapong, M.D., M.S., University of Chicago |
(PPTX, 4.8 MB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Managing Cardiovascular Disease (CVDs): Clinical Perspective David Schopfer, M.D., University of California, San Francisco |
(PPTX, 1 MB) |
| Data Capacity for Patient-Centered Outcomes Research for People with Multiple Chronic Conditions | Managing Pain and Opioid Use: Clinical Perspective David Thomas, Ph.D., Office of Research on Women's Health |
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