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eCare Plan Joint NIH/NIDDK AHRQ Project


Technical Expert Panels

NIDDK and AHRQ convened four Technical Expert Panels (TEP) to identify data elements important to the care of people with multiple chronic conditions and associated data standards from common clinical terminologies (i.e., ICD-10, SNOMED-CT, LOINC, RxNorm, CPT). Each TEP is focused on data elements relevant to specific condition(s) included in the initial proof-of-concept project. The TEPs include the domains listed below. 

TEP Deliverable: Working Draft of Data Element Standard Set (DESS)

The TEP will identify the data elements required for electronically exchanging health information for individuals with T2DM, CVD and Pain with OUD. These data elements will inform the  development of the clinical information models.

The multiple chronic conditions (MCC) data elements & standards set (DESS) will include a prioritized set of data elements and associated standards from common clinical terminologies (i.e., ICD-10, SNOMED-CT, LOINC, RxNorm, CPT) identified by the project technical expert panels as critical to care for people with congestive heart failure, ischemic heart disease, hypertension, pain, opioid use, and/or type 2 diabetes. In addition, the MCC DESS will include data elements and associated standards identified through complementary projects, including the NIDDK CKD e-Care Plan project, the Electronic Long-term Services and Supports Service Plan project, the Gravity Project, the Pharmacy e-Care Plan, and PACIO. 

 https://docs.google.com/spreadsheets/d/1BFPyw_hSMc1tw6fF0-AukUgras-9pFU4/edit#gid=2070826215


CIM/FHIR Profile Questions: TEP feedback is needed

All TEP member please review the document below and provide feedback on these high level questions regarding Clinical Information Models and FHIR profiles for the initial CKD data.

https://docs.google.com/spreadsheets/d/1FdGUMwIAq3_unc2Oep0_F6VElqEFZmc-GQ18DTSSFmI/edit#gid=0

Common TEP Resources/Information

Resource Description

(PDF, 496KB)

Patient personas and stories describing patient barriers related to socioeconomic status

 

(PDF, 2.9 MB)

Provider personas and stories providing an example of what is what needed in a care plan

(PDF, 2.1 MB)

Patient personas and stories providing an example of what is what needed in a care plan